Thank you to everyone who supported our walk on October 27, at DogFest, a fund raiser for Canine Companions for Independence (www.cci.org). Scott and I (Scott’s mom) were the top fundraisers with a total donation amount of approximately $800! CCI is a fantastic organization. It is a national, non-profit organization that trains assistance dogs for people […]
An acquaintance put us in touch with good friends of theirs, Tom Anderson and his wife, Marianne Anderson, who worked at Microsoft in the early days of Windows and Excel. Tom was Program Manager on such products as Windows 3.11, Windows for Workgroups, Windows 95, and Internet Explorer, among other projects. Tom is now working […]
Scott has been selected to receive a Character Counts Recognition Award from the municipality in which we live. The award honors residents who “promote and model good character through their service and actions in outstanding ways” and who are rarely publicly recognized. Unbeknownst to us, one of Scott’s former Middle School teachers nominated him for […]
We received a clinical diagnosis for Scott’s condition this month from his neurologist at Children’s Hospital in Pittsburgh. “Clinical” means the diagnosis is based on observable symptoms rather than finding a genetic mutation. She believes he has a motor neuron disease called BVVL (Brown-Vialetto-Van Laere), which is extremely rare. See a more complete description of the discovery […]