A beautiful husky named Buddy has joined our family and Scott has completely fallen in love with this dog. He enjoys giving Buddy head and chest scratches and playing with him. Like all dogs, Buddy sometimes (often?) is big goof, giving Scott lots of laughs. Buddy suffers with unexplained bouts of intestinal problems, but with […]
A few months after Scott was diagnosed with BVVL (back in April of 2012), the administrator of a BVVL Facebook page contacted me and invited me to joined the closed group. I am not a fan of Facebook, but since the disorder is so rare and there were no support groups in my area–much less […]
It was a real milestone for Scott when he passed his driver’s license test early this year. It’s great to have another driver in the house and Scott enjoys going off on his own to visit friends, do some shopping, and take his little sister out for ice cream. He has no vehicle modifications, although […]
Scott graduated from high school on June 7, 2013. This is a momentous milestone for any young person, but is especially meaningful to us. Four years ago, when Scott’s health began to deteriorate, we didn’t know if he would live to see this day. We are so excited and happy for him, but also sad […]
We met with representatives from Make A Wish earlier this year and discussed some possible wishes for Scott. They are investigating these and determining what’s feasible. The tentative plan is to have the wish fulfilled this summer.
Thank you to everyone who supported our walk on October 27, at DogFest, a fund raiser for Canine Companions for Independence (www.cci.org). Scott and I (Scott’s mom) were the top fundraisers with a total donation amount of approximately $800! CCI is a fantastic organization. It is a national, non-profit organization that trains assistance dogs for people […]
An acquaintance put us in touch with good friends of theirs, Tom Anderson and his wife, Marianne Anderson, who worked at Microsoft in the early days of Windows and Excel. Tom was Program Manager on such products as Windows 3.11, Windows for Workgroups, Windows 95, and Internet Explorer, among other projects. Tom is now working […]
Scott has been selected to receive a Character Counts Recognition Award from the municipality in which we live. The award honors residents who “promote and model good character through their service and actions in outstanding ways” and who are rarely publicly recognized. Unbeknownst to us, one of Scott’s former Middle School teachers nominated him for […]
Rachel and Scott met as freshmen in high school, less than a year after Scott’s neurological symptoms appeared and his hearing worsened. He was apprehensive about how high school was going to go—it was a different school, different teachers, and a much larger student body. They had a couple of classes together and struck up […]