Rachel and Scott met as freshmen in high school, less than a year after Scott’s neurological symptoms appeared and his hearing worsened. He was apprehensive about how high school was going to go—it was a different school, different teachers, and a much larger student body. They had a couple of classes together and struck up […]
December 2010
It seems we are no closer to a diagnosis, despite many doctors’ appointments and tests. Scott has tested negative on virtually all the tests that have been done on him to date. His doctors have backed away from ALS, fortunately, although that remains a possibility. See the December 2010 entry on the Medical Details page […]
Inspiration Award, 2009
At Scott’s eighth grade graduation in the spring of 2009, he was presented with an Inspiration Award by his social studies/history teacher. The award was given to him on behalf of the teachers, staff, and administrators at his school, who daily witnessed his optimism and sense of humor in the face of the degeneration of […]
The Search Begins, 2009
Scott’s health deteriorated in the fall of 2008 at the age of 13. It was not obvious, and, typical of a teenager, Scott hid most of it from us. Around Christmas of 2008, it became too noticeable for us to ignore. It was especially frightening in January through March of this year, when we could […]